Bhubaneswar, April 16: Hemophilia, a rare genetic disorder which hampers the body's ability to produce clotting factors and vital proteins that control bleeding, is now a challenge before the medical science.
At least, 1 in 10,000 people worldwide suffer from the rarest of the rare disease, who need an emergent and community intervention.
It’s why, the global bleeding disorders community needs to come together to celebrate "World Hemophilia Day".
The theme of the event this year is “Equitable access for all: recognizing all bleeding disorders”. The World Federation of Hemophilia (WFH) vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live.
According to the hematologists, Hemophilia is a disorder in which blood doesn't clot normally. When blood can't clot properly, excessive bleeding (external and internal) occurs after any mere injury or damage.
On this World Hemophilia Day, let's shed light on the life-altering condition that affects. Following a trivial injury for most can turn into a life-threatening situation for a person with hemophilia.
Here's what happens when someone suffers from Hemophilia
When a hemophiliac sustains an injury, their blood lacks the necessary elements to form a clot, and the bleeding continues far longer than it would for an individual without the condition.
This excessive bleeding can lead to significant concerns. In the case of an external wound, it could result in substantial blood loss. However, internal injuries are often more dangerous, leading to bleeding inside joints, muscles, or vital organs. If undetected or untreated, this internal bleeding can cause severe damage or even be fatal.
Hemophiliacs must swiftly address any injury, no matter how minor it may seem, with appropriate medical care. This often involves an infusion of clotting factor concentrates into the bloodstream to replace the missing or deficient clotting proteins.
Living with hemophilia requires a careful balance. Hemophiliacs are encouraged to lead active lives while avoiding activities that increase injury risk. Regular exercise strengthens muscles and protects joints, but contact sports and activities with a high risk of falls or injuries should be avoided.
Managing hemophilia involves routine check-ups, prophylactic treatment, and immediate care for injuries. With advances in medical science, hemophiliacs can lead fulfilling lives provided they receive the necessary care and adhere to prescribed treatment plans.
